brain-plasticity – somethinggrand

…. in which the blogger makes a pop culture pun in each header.

“Rocky“

So, something fairly big for me happened recently. Following my stroke ten months ago, I would look out the hospital window from my wheelchair and see people–strolling on their lunch-breaks, walking their dogs, or jogging–up and down the small hill that leads from the hospital to the Bethany Gardens and farm owned by the sisters of St. Martha. At that time, I was a ‘two-person transfer’ and couldn’t walk a meter, let alone a kilometer. “See that hill?” I said to Sara. “I’m going to walk up it with you one day. That’s my goal.” There’s a small tower at the top. My dream was to touch that tower like Rocky finally able to take the steps from the iconic movie. It felt impossible, but I fervently envisioned getting to the top of that hill, giving thanks for my recovery–and being outside, right side up, and on my own two feet.

This week, it finally happened. Sara and I were running separate errands on a busy day and we both wound up in the vicinity of the hospital at the same time. We decided to meet for tea at the volunteer-run BreakAway Cafe that helps pay for new medical equipment. Last fall Sara had been there pretty well every single day to see me, and she still had a free coffee on her hospital coffee card. It had been a while since we’d both been at St. Martha’s together since my stay. After our drink and my medical appointment, Sara said, “is today the day?” and looked meaningfully at the hill. And we set off. It was surreal to make it all the way to the top.

It wasn’t entirely as envisioned. My gait wasn’t as smooth and confident as I’d imagined from my wheelchair in September. I was winded by the slope and had to stop to catch my breath. (That certainly wouldn’t have happened pre-stroke to this long-distance pilgrim!) And when we got to the top it turned out there was no way to actually touch the tower, which turns out to sit behind fences, cattle, and construction.

Even dreams that come true don’t usually do so in the ways we’ve imagined.

But – it felt wonderful to reach the top just the same! And I was thankful every step.

“Telltale Heart“

(apart from the title, what’s below doesn’t actually have much to do with the Edgar Allen Poe short story, which is frighteningly narrated here, if you’re interested)

Today I was at the hospital for another important step in recovery. I’m still doing physio at St. Martha’s at least twice a week…odd to remember how when I was new to Antigonish I used to think I should go see the place because I’d never been inside. But this morning wasn’t physio. After three tries and two different technicians, they got an IV line into my arm for what’s called an “agitated saline contrast,” or echocardiogram bubble test, pumping “bubbles” into my vein, then watching them travel to the heart to see if my surgery in April had really closed the hole between my heart’s upper chambers.

The great news: it had. No bubbles got through. This means that now no future clots can sneak through there, either. I said thank you to Dr Amy Hendricks, and told her she plays a mean piano and violin (I had been surprised to see her perform in a wonderful concert at St Ninian Cathedral). She laughed and said thank you, and that everyone needs to have a few hobbies on the side. That’s life in a small town. (Pictured are my friend and fellow pilgrim Sister RéAnne and I at the concert before it began).

“My Left Foot (and Hand)”

This week I also got my Botox shot for leg spasticity. Or rather six shots, into my left calf, as I lay on my stomach on a clinic bed in Halifax. There was no immediate change, except some mild flu-like symptoms I’m presently experiencing. Apparently it takes 4-6 weeks for the poison to reach full efficacy and (we hope) work its wonders. However, tonight I feel like my leg already swings a bit easier, which might be psychosomatic. In any case, convincing my plastic brain to accept that my leg can be trusted again is apparently part of the point. We’ll see!

I’m starting to be able to do some slow and basic typing with my left hand. Just barely. Soon the hand tires and my xpinxkixe finger (there it is, doing it again), starts drooping and hitting errant keys and I have to go back to one hand. But… it’s a start. The trick is holding my left hand in the air without the fingers curling in (spasticity) or the whole hand dropping, then adding to that the coordination of using fingers to distinguish between the “a” and the “d” keys when they are only beginning to remember their connection to my brain…

“The Gatto Came Back”

Okay, that heading holds a fairly obscure pun, but IYKYK. (If you don’t, click here for “Gatto”; and watch Canadian entertainer Fred Penner sing the song here !)

My two universities have both been incredibly supportive through these months of stroke and stroke recovery. Firstly, Concordia’s Dept of Theological Studies and its chair, Dr. André Gagné, worked to renew for one last time my status as an “affiliate assistant professor” there. I love still being associated this way with Montreal, even though the thought of a trip to the big city and taking public transit in my present condition gives me the heeby-jeebies.

Second, Saint Francis Xavier (StFX) and my colleagues here in the Religious Studies department have been nothing short of wonderful. In addition to taking over my teaching last fall, interim chair Dr Robert Kennedy dropped by with a stunning white orchid from the department after my heart surgery. You may recall that they also sent flowers and cards during my hospital stay, and Sara got gift certificates for take-out and ready-meals from our then Dean of Arts office and the department. Recently, the University also made “a big deal” of my winning a Sask Book Award with a special news release. New colleague Dr Gerjan Altenburg invited me fishing with him and his son. And this last week, Dr. Erin Morton, Associate Vice-President, Research, Graduate and Professional Studies, and head of the Gatto Chair Committee, confirmed that my application for a one-year extension of my chairship was approved. This means that the research travel and meetings for which I had funding will not be lost to my months in hospital. I’m incredibly grateful!

“Running Back to Saskatoons”

I’ve been hanging ’round hospitals” is one of the lines from the 1972 The Guess Who song “Running Back to Saskatoon,” which also mentions libraries, grease monkeys, and Moosomin SK. But it’s actually now that I’m home from the hospital that I’ve really been able to enjoy Saskatoon (or as they say here in Nova Scotia, “serviceberry”) season.

It’s a good year here on our three acres for Saskatoons, even if you’d laugh to watch how slow I am to pick them. My first attempt at a Saskatoon crumble was only okay (not enough berries). But today is Saskatoon pie day. I followed a recipe from the beautiful – and fun – cookbook Flapper Pie and a Blue Prairie Sky, which devotes several pages to Saskatoons and their place in prairie cuisine and culture.

It’s not a beautiful pie…I used a store crust, and my thumb marks disappeared in the baking. But it’s mine. And what I really wanted to say was not so much about Saskatoons (or pies!) as the feelings that arose in me this year as I picked the deep purple berries. The other evening I was out during the “golden hour” with my plastic pail. Somewhere in the near distance I could hear children playing. A rooster crowed from one of the nearby farms, and the songbirds – we have a lot of song sparrows, vireo, yellow warblers and more – were calling to each other.

Despite the mosquitoes, deer flies, and ticks, suddenly there was so much peace and joy welling up inside that I could feel it like a physical presence. Here I was, standing on my feet, reaching with both hands, however awkwardly, for berries, and tasting the sweetness of this land where I live.

I feel incredibly blessed to be living, period, and to be living in the country. Yes, the power goes out sometimes, yes, there are critters, some great, mostly small, to be aware of and learn to live with, yes, there is grass cutting and incessant yard care, and yes, there are no bakeries or restaurants or cool little take-out spots just around the corner like I enjoyed in Montreal. But there are other pleasures, like sitting with tea looking out at the little bit of salt water that fingers in at the foot of our yard, like watching herons rise up into flight or eagles float lazily overhead. Like tossing ripe Saskatoons into your mouth and hearing the soft tap-tap-tap of a downy woodpecker somewhere deeper in the bush. And feeling alive and connected to it all.

“Radio Ga Ga”

This old song by Queen actually has pretty prescient lyrics in the age of TikTok and Instagram.

Another recent highlight for me was being interviewed by CBC Radio One Montreal’s Sonali Karnick about my new book, Someone Else’s Saint: How a Scottish Pilgrimage Led to Nova Scotia. Interview HERE. Because I’ve known lovely, warm, and good-spirited Sonali for years, and All in a Weekend’s equally warm and thoughtful producer Jill Walker and I are so comfortable with each other, the interview felt like a happy reunion. My friend and fellow author Ken Wilson said as much on social media: “You two sounded like old friends. It was like eavesdropping on a fascinating conversation at the next table.” (Speaking of fascinating, Ken’s book Walking the Bypass is coming out this fall). Did I mention you could hear Sonali’s and my conversation here?

These Are the Moments

The 2009 album “These Are the Moments” by local Cape Breton group The Rankin Family contains the song “Fare Thee Well Love” – which is my wish to you, in your moments, whatever and wherever they are..

That’s a snapshot of what’s been happening. It’s been ten months since the event that overturned my life last fall. That one moment of garbled speech, of a tingle running down my arm, of Sara running for the Aspirin and calling 911, has led to all these moments since.

Isn’t it profound how a single moment can change our lives, and how often that happens, in some form or another?

And yet life still goes on, until it doesn’t. And for this moment now, I’m thankful. And thankful to you for taking a moment to read this. Tonight is garbage night. Time to head out with the wheelbarrow, and then maybe try that pie…

[Update: As they say in the Maritimes, it was some good.]

This week Lori and Lee from my physio team have been keeping an eye on my left hand. It’s going on two weeks that it’s been swollen. (I promise that’s unrelated to using it to peel and grate 3 cups of carrots for my first carrot cake since the stroke.) With the swelling comes cramping of my wrist & fingers at night. “I want you to try wearing this to sleep,” Lori said, pulling out a brace that looks like a plush toy octopus. “If it hurts, take it off.”

The brace actually helps.

Reflecting on the cramping coalesced some thoughts about my left side. This stroke has caused me to observe my own body as an outsider, to put it mildly.

Here’s what I’ve noticed: at first when I started being able to almost imperceptibly budge my hand, those left-side movements required massive exertion. After we got over crying with relief that my brain connected to that hand at all, Sara and I laughed that just to wiggle my thumb a millimeter made me sweat and turn red. I had to tense my whole core like I was doing sit ups, bend all the fingers of my right hand in support, and even curl my toes. My tongue stuck out like a focused toddler. It seemed that every muscle in my body was involved in those first miraculous thumb movements!

I now think that’s because they all were.

Now that my left side has limbered up considerably, this “sympathetic movement” is still common. If I lift my left arm up, my right toe unconsciously lifts in sync.

Other mystifying aspects of my recovery seem to support this. Why did the ice bath they gave my left hand hurt so badly when my right hand could frolic like a happy Scandinavian amongst the cubes? Why, when I go to use my unaffected hand, does my left hand go into spasm? Why does it take my whole body to shake that egg in music therapy? (See below.) And why, when I yawn, does my left arm sometimes rise from my side like some unbidden ghost?

I’m calling it the “walking and chewing gum” problem. I think the reason everything moves is because, when it comes to creating action on the left side of my body, my brain is shouting at every neuron in the house. My rearranged “command centres” don’t yet know (and maybe the newly-conscripted neurons don’t know either) which of them is now responsible for, say, my third finger. So every neuron gets every order to move and they can’t all do everything at once.

Getting well, then, is not as simple as just strengthening my arm, hand, and leg. It means training a new command chain. I want the extraneous twitches to drop away. I don’t want neighbouring neurons and their muscles to jump to attention every time I scratch an itch. Increased use can also harden those apprentice neurons to things like cold ice baths!

Of course, I know that in the end, I’m fortunate my left side is moving at all! The fact that on Friday Lee had me breaking down the micro-movements in climbing stairs tells me a/ I can climb stairs, and b/ I’m at an “improving” rather than just “doing” stage thanks to brain plasticity.

Firsts!

Speaking of which, here are some of this week’s “firsts”:

1/ a belt. I can wear a belt again, mostly because I can fasten it for the first time since my stroke. Not pretty, but it gets done. Works best with pants slightly too large, which is easier these days. (No glass of wine with dinner in the hospital!)

2/ a wax manicure. Ria helped me dip my hand in molten wax. Then she wrapped it in a plastic bag and then a towel. Afterwards we all agreed that even if it didn’t heal anything, it still felt pretty darned good!

3/ zippers. After attaching a twist tie and paper clip to my winter coat I can do it up, most of the time. I never before realized that those little fabric extensions on zippers are an accessibility feature.

4/ first solo excursion. Sara was teaching Wednesday evening, but I really wanted to hear the “Women of the Antigonish Movement,” lecture by Prof. Robin Neustaeter and StFX student Sophie Gallant. So I put on my coat, signed myself out, took the elevator down to the entrance, got security to call me a cab, and off I went to the Antigonish Heritage Museum. I was momentarily stymied when the cab driver never got out to help me with my walker. But I managed to hoist it into the back of the van and back out again all on my own–another first! (No tip for this driver.) Sara came after class to drive me home. She packed the walker, and didn’t even ask for a tip.

5/ that carrot cake. It turned out perfectly, and Sara miraculously made cream cheese icing, with no cream cheese in the house! The physios and nurses got most of it, as a small token of thanks.

6/ “driving” test! This week I also took an initial driving test. Well, it wasn’t really driving, but a little plastic accelerator and brake pedal in the physio room, designed to check my reaction time. There were also some sequential logic tests on paper and an “identify the traffic signs” quiz. I passed them all without problem. This means I’m now recommended to retake the provincial driver’s exam as a one-handed driver.

7/ most importantly: for the first time this week, I can consistently raise my left index finger, and spread my left-hand fingers so I can pick up and let go some objects. I can also swing my left arm into the air and hold it there (see below). In the long arc of my recovery these are massive developments. Yet I actually used my fingers a few times before even realising it, maybe because I’ve been “visualizing” doing it all week!

Home for the weekend.

I’m also finding it somewhat easier to manoeuvre around the yard with a cane. This weekend, we planted garlic. Or rather, Sara did, under my “Green Acres” style tutelage. But I did manage to shovel a little earth, mostly just to try. A gaggle of marauding Guinea Fowls watched us. They started visiting recently, and Sara’s in love and wants to adopt them or get some of our own.

Surprise visitor.

One visitor this week was local artist and activist Sara avMaat. She had just launched her latest ‘zine project, Rat Tales, at the StFX Art Gallery. It’s a tale of two “philosophically minded” mine-sweeping rats named Wesley and Trevor, based on real-life African giant pouched rats who do this work. Since I missed the launch, Sara dropped off a signed copy! I used her previous comic, Hope Unleashed, as a textbook when I taught “Religions and The Environmental Crisis.”

Back to the “office.”

The fact that Sara and I sometimes slip up and say that I go “back to work” or even “back to the hotel” after a weekend pass is a sure sign of how at home, productive, and rested I feel in my private hospital room. Sweet Pea seems to have internalized my schedule too. Today when it was time to go back she let us know she wanted me to stay….

There are so many interesting carers at St. Martha’s I’d love to tell you about all of them. Today, Dionne comes to mind. Dionne is a thoughtful, experienced, and smart LPN who has lived in Greece and Germany – prompting us to converse about German pastries and Greek spanikopita and olives. Thursday evening she dropped by the room and said: “I need to write some kind of inspirational verse on the white board. What have you got?” I said, “Never ask a writer a question like that,” to which she replied, “That’s exactly why I’m asking you.”

When Sara dropped by after class, she quipped, “How about: ‘Well, at least you’re not dead’?” and Dionne laughed. Eventually I came up with something to share. I never paid much attention to it after that until Friday afternoon, as I was preparing to come home for the weekend. Then, one of the elderly patients was shuffling by my room with her walker. She exclaimed, “oh, look at that!” and then read the saying out loud. I’ll end with it here, since it encapsulates how I feel about all your support:

“Many hands make light work – and many hearts make good healing”

Please keep praying, meditating, and raising thoughts, especially for my hand and my shoulder … and my neurons … as I go into the final stretch of my hospital stay: I’ve been told my discharge is scheduled for December 18th! Sweet Pea will be pleased.