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A Year and a Half Strokeaversary

This week I found this old alarm notice on my phone. It brought me back with a jolt to my four months in hospital from September to December 2024. As I deleted it I said a prayer of thanks that, as much as I appreciated their care, I’m no longer at St Martha’s Regional.

In a minor coincidence, this week I also heard that the unpublished collection of “stroke poems” I wrote in the hospital was shortlisted for the Writers Federation of Nova Scotia‘s “Rita Joe Poetry Prize”! Rita Joe was a famous Mi’kmaq poet. It’s an honour just to be shortlisted. I have the privilege of being friends with several extremely talented poets, but have never published poetry myself. I’d love to share these poems with other stroke survivors and carers, so fingers crossed!

Eighteen months since my stroke, already! The reminders that popped up spurred me to write an update. Only, what to report?

#NoPlateau

Quite early on in my recovery, local physios warned me not to be disappointed when I hit the “plateau” at six months or so. But at the same time, they kept being pleasantly surprised at my determined progress. Sara developed the pep-phrase “HASHTAG NO PLATEAU”! I still haven’t hit one and don’t plan to.

I thought of calling this post “and then, one day, you’re putting on your belt using your left hand.” Or: “and then one day, you walk down the stairs and realize you didn’t hold the handrail.” Both statements are true in just the last two weeks. The idea that I could now be twisting my left arm around my body to dress, or to towel myself off after a shower, is an answer to prayer. For the first time since my stroke I can convincingly squeeze shut my grip exerciser. I can now actually “walk” a short base line on the guitar with my recalcitrant left pinkie. My hard-working Halifax Occupational therapist Lindsay is giving me more complicated wrist exercises on my phone’s Tenzr physio app, like tracing the entire alphabet in the air with my left fist. Miracles never cease. (Sara encouraged me to do it in Greek. Okay, not all miracles materialize.)

But the truth is, I also could write: “and then one day you’re stopped by a colleague to talk in the parking lot, and after just an extra 60 seconds in the cold, you suddenly need help to the car.” Or: “when you’re tired you still slur words, and once after climbing a bunch of stairs you lost your balance in front of a group of students and almost fell sideways into the wall.” Those statements are true also.

In a nutshell, THAT’S how it’s going. I’m grateful beyond words that my recovery continues even now, a year and a half after my stroke. Every day I have just an incremental bit more strength and flexibility and control in my left hand and arm. Every week my balance and my ability to crouch down and stand and walk improves very slightly. I mostly know this from others like Lindsay, who only see me every month or so and are amazed at my progress. Every week there are several new #StrokeFirsts I can celebrate when Sara and I read through all the slips we put into the weekly gratitude cup. Every week I’m surprised by what I can do. And less and less by what I still can’t.

Like the saplings

Sort of like Spring, my recovery is happening in bits and pieces. I almost felt like my old self again – and certainly felt a kinship with the earth – when I took a walk around the property this week. Like me, the saplings Sara planted while I looked on seem to have cheerily survived.

The stones I dumped by the inlet last summer need spreading, but it’s not yet the time.

A wild-seeded pine will almost only pop up where there is already a birch, so perhaps the birches are “parenting” the saplings? Some creature left its scat nearby but I’m not sure what kind it is, and I don’t have an app for THAT yet…

The brook on one side of our property is doing well, and this week the robins reappeared. Their singing is a joy, and might be the reason Theodore the reformed barn cat is crying so sadly to go outside for the first time since he so gleefully adopted us and moved in.

The sunset of my fellowship

There’s only a year left in my renewed Father Edo Gatto Fellowship at StFX, so I’m busily checking off my Gatto Chair goals. A big one happens this week. As soon as I knew I would be translating my historical research on the fourth century Saint Paula to fiction, I wanted to talk to other academics who do this. It’s finally happening this week! Sara will be moderating the webinar conversation, “Novel Research: Meet Four Historians of Religion Who Write Fiction.” I’m excited to talk about writing with these scholars I admire. You’re welcome to join us: register here!

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stroke-recovery Uncategorized

Strokeaversary: All the Things It Wasn’t

This week, something unusual happened.

It wasn’t the snowstorm. Having to park the car by the road at the end of our lane to be sure we can get to work in the morning isn’t that strange, even though the snow-laden trees are beautiful. Here in Pomquet, in Antigonish County, a storm day requiring our neighbour to come plow us out is starting to feel like a bi-weekly event. I had some trouble keeping up with Sara on her march to the car. But no, it wasn’t that.

Nor was it the sauna. In December, on receiving unexpectedly good news after a scary cancer test, I decided I’m not getting any younger and I’d buy that sauna kit I’ve dreamt of for years (ever since being pastor to the wonderful Montreal Finns and enjoying the rite with them). With the help of local carpenter extraordinaire Evan Theriault (Theriault Timberworks) I’m hoping we soon have our very own sauna in action for relaxing in this deep-freeze. That will be great. But no, it wasn’t that.

And no, it wasn’t that I’m starting to feel increasingly guilty about my handicapped parking sticker. Yesterday I felt badly using the space at the Farmers’ Market, although in the end I’m glad I did, since my balance on ice still isn’t the greatest. I’ve started to leave spots closest to the door for those who need them more. I guess that says something about my recovery and the general improvement to my walking! It’s easier and easier for me to tramp around the property, even on days like this (see below). But it’s still not that.

Nor is it that the big, furry feral feline we named Theodore, whom Sara trapped, neutered, and had patched up by the vet for his infected paw injury, didn’t immediately spring back out into the wild on his release. Instead he surprised us by turning into some kind of indoor love-bunny. He has apparently decided to adopt us. He’s incredibly smart and affectionate. As a dog person and someone with mild allergies I don’t encourage Theodore too much, but he seems to think I’m okay. We’re warming up to each other. But it’s not that either.

Nor is it that Sara tried her hand at making bagels (Montreal-style, of course!). As I write this I’m enjoying that yeasty, honey-laden smell and taste, and I can’t wait to try them with cream cheese. A rare delight and pleasure, indeed! (Recipe here). But no, not that…

Finally, it’s not that for the first time in months I dusted off my completed novel manuscript and read through it again, and I still think it’s great! I’ve been inspired to start sending it out to publishers again. The drawing below is from my friend Robert Aubé (more at his website). The novel is set in the very real location of St James Anglican Church, Cacouna QC. I’m rejuvenated. But no. Not that either…

What it IS, is that this last week I had Sara film my daily attempts at guitar. Every day I try to get my left hand fingers to move better by practising my playing. Here’s where I’m at post-stroke as of yesterday: https://vimeo.com/1157626018?share=copy&fl=sv&fe=ci

And here’s where I was pre-stroke, with that same piece (and with help from my youngest). I hope someday to get back to this level: https://vimeo.com/433444043

No. What actually happened this week that was unusual, was that I watched the recording Sara made, then the one from a couple of years ago. Then I broke down and cried.

I don’t weep like that often. It wasn’t from sadness, exactly, although I know I’ve lost much. I had to reflect a while on it. It’s complicated. While some of it was sadness, more of it was happiness – happiness I’m alive. Even though a year ago I could only twitch my thumb (and barely that), and now my hand has dramatically improved and is still getting better. Some of my tears came, I think, from realizing just what an endurance test recovery has been, despite the help and support of so many: the months of struggling with coats, and socks, and shoes, and bags, and silverware, and backpacks, and grocery bags, and everything else. Every day making the decision to use my left hand even though every time, it’s harder. (I just remembered to do it again, while typing this sentence.)

My point is NOT that congratulations are needed. There are lots of folks who’ve had it much worse. And there are certainly others who have to be much much more courageous. It’s that we are, all of us, emotional creatures, whole beings with needs, regrets, hopes, sadnesses, and joys. All. And life can sometimes feel the most beautiful, and the most rewarding, in precisely those times when it’s not the easiest.

I wouldn’t wish my stroke on anyone. But I was glad, this week, to go through such a heart-filling experience as that unexpected cry. Given the state of the world right now, we probably all need one.