Stronger After Stroke – somethinggrand

This week I found this old alarm notice on my phone. It brought me back with a jolt to my four months in hospital from September to December 2024. As I deleted it I said a prayer of thanks that, as much as I appreciated their care, I’m no longer at St Martha’s Regional.

In a minor coincidence, this week I also heard that the unpublished collection of “stroke poems” I wrote in the hospital was shortlisted for the Writers Federation of Nova Scotia‘s “Rita Joe Poetry Prize”! Rita Joe was a famous Mi’kmaq poet. It’s an honour just to be shortlisted. I have the privilege of being friends with several extremely talented poets, but have never published poetry myself. I’d love to share these poems with other stroke survivors and carers, so fingers crossed!

Eighteen months since my stroke, already! The reminders that popped up spurred me to write an update. Only, what to report?

#NoPlateau

Quite early on in my recovery, local physios warned me not to be disappointed when I hit the “plateau” at six months or so. But at the same time, they kept being pleasantly surprised at my determined progress. Sara developed the pep-phrase “HASHTAG NO PLATEAU”! I still haven’t hit one and don’t plan to.

I thought of calling this post “and then, one day, you’re putting on your belt using your left hand.” Or: “and then one day, you walk down the stairs and realize you didn’t hold the handrail.” Both statements are true in just the last two weeks. The idea that I could now be twisting my left arm around my body to dress, or to towel myself off after a shower, is an answer to prayer. For the first time since my stroke I can convincingly squeeze shut my grip exerciser. I can now actually “walk” a short base line on the guitar with my recalcitrant left pinkie. My hard-working Halifax Occupational therapist Lindsay is giving me more complicated wrist exercises on my phone’s Tenzr physio app, like tracing the entire alphabet in the air with my left fist. Miracles never cease. (Sara encouraged me to do it in Greek. Okay, not all miracles materialize.)

But the truth is, I also could write: “and then one day you’re stopped by a colleague to talk in the parking lot, and after just an extra 60 seconds in the cold, you suddenly need help to the car.” Or: “when you’re tired you still slur words, and once after climbing a bunch of stairs you lost your balance in front of a group of students and almost fell sideways into the wall.” Those statements are true also.

In a nutshell, THAT’S how it’s going. I’m grateful beyond words that my recovery continues even now, a year and a half after my stroke. Every day I have just an incremental bit more strength and flexibility and control in my left hand and arm. Every week my balance and my ability to crouch down and stand and walk improves very slightly. I mostly know this from others like Lindsay, who only see me every month or so and are amazed at my progress. Every week there are several new #StrokeFirsts I can celebrate when Sara and I read through all the slips we put into the weekly gratitude cup. Every week I’m surprised by what I can do. And less and less by what I still can’t.

Like the saplings

Sort of like Spring, my recovery is happening in bits and pieces. I almost felt like my old self again – and certainly felt a kinship with the earth – when I took a walk around the property this week. Like me, the saplings Sara planted while I looked on seem to have cheerily survived.

The stones I dumped by the inlet last summer need spreading, but it’s not yet the time.

A wild-seeded pine will almost only pop up where there is already a birch, so perhaps the birches are “parenting” the saplings? Some creature left its scat nearby but I’m not sure what kind it is, and I don’t have an app for THAT yet…

The brook on one side of our property is doing well, and this week the robins reappeared. Their singing is a joy, and might be the reason Theodore the reformed barn cat is crying so sadly to go outside for the first time since he so gleefully adopted us and moved in.

The sunset of my fellowship

There’s only a year left in my renewed Father Edo Gatto Fellowship at StFX, so I’m busily checking off my Gatto Chair goals. A big one happens this week. As soon as I knew I would be translating my historical research on the fourth century Saint Paula to fiction, I wanted to talk to other academics who do this. It’s finally happening this week! Sara will be moderating the webinar conversation, “Novel Research: Meet Four Historians of Religion Who Write Fiction.” I’m excited to talk about writing with these scholars I admire. You’re welcome to join us: register here!

“Dad, can I borrow the car tonight? I promise I’ll fill ‘er up.”

After my stroke, I was required by law to take my driver’s tests (written and practical) again, as a “one-armed driver.” I went in to Access Nova Scotia for an oral exam on road rules and safety, a road signs quiz, and a 45-minute road test. My jovial inquisitor was Teresa. At the end of it all, I officially got to keep my driver’s license.

Yayyy!!! I feel SO thankful.

The Driving Exam

It seems fitting that my 90-min driving exam took place almost five months to the day from my stroke back in September. I was supposed to take it a week ago. But I hurt my unaffected right arm last week overworking it (trying to rake snow off our solar panels, I think, or maybe it was that time I carried in all the groceries at once). It took a week for my “driving arm” to recover enough to turn a corner without grimacing.

Was I nervous? Of course! It will be – unbelievably to me – 50 years this June since I passed my first driver’s test in Regina, Saskatchewan (the above grouchy photo was taken a year or two after that time….I’ve since learned to smile!). The very professional and friendly Teresa here in Antigonish was all smiles when we got back to the provincial office. “Look at that,” she said, holding out her clipboard. “I barely wrote a thing. Sometimes I have to fill these sheets! You got just enough points deducted to prove you’re human.” I know one of the two things I got docked for was not signalling when I left a roundabout, but it was because I couldn’t safely take my right hand off the wheel to get all the way over to the turn signal while making that sharp a turnoff.

Appointments, Appointments, Appointments

Since Sara and I live in the country, not having a driver’s license would have meant a major life change. These days I’m teaching two days a week at Saint Francis Xavier University, 17 km down the highway. (Last week’s midterm exam for Bible and Film pictured above!) A normal week also means driving in two mornings for the Nova Scotia Cardio rehab program “Hearts in Motion” at the StFX Amelia Saputo Centre gym, where I and a dozen other heart patients get sessions on exercise and diet and 75 minutes on the treadmills, stationary bikes, and (for me) elliptical machines. I usually bump into one or two of my students, which is nice. Twice a week I also head back to the stroke rehab centre at the hospital, now as an outpatient. There I do 30 minutes of physio and 45 minutes of occupational therapy. Then there are all the appointments for blood tests, stress tests, reassessments, and consults, most here, but some coming up in Halifax.

I remember the old folks always complaining about how busy they were with appointments. Preoccupied juggling multiple part-time jobs and kids, I remember thinking: that’s hardly something to keep a body busy. Boy was I was wrong! I’ve needed to post myself a schedule just to keep all my rendezvous’ straight and out of conflict with my teaching times. I’ve also apparently joined that group of people who have to remember to take multiple pills daily, counting them out carefully every evening.

Me and My Big PFO

A big date for me comes up the end of this month in Halifax: my initial cardiac procedure pre-appointment. In case you missed my earlier mention of this: apparently I have a “PFO,” a hole between the upper chambers of the heart. This hole exists in newborns, but in almost all people closes in very early infancy. In a small percentage of us, that hole never closes. A PFO can allow a clot from the leg to pass directly to the brain rather than being shunted safely to the lungs for “processing.”

No one seems to know for sure if this is what happened to me. But it may have been. Something poetic about the fact I have a hole in my heart.

At my pre-appointment they’ll confirm whether I’m a candidate to have that hole closed with an arthroscopic procedure involving magnetized rubber washers. Of course I’d like that procedure asap. I don’t want another stroke (although I’m grateful for the meds that have finally brought my blood pressure down from the mountaintops)! But I know I’m fortunate to be seen so quickly about this. For now, on the doctor’s advice I’m not flying or taking long drives. A trip to Montreal to see the kids, or speaking at Gathering of Pilgrims 2025 in Vancouver as planned, are out.

Refuse the Plateau!

The book “Stronger After Stroke” that was sent to me by Greg and Ingrid Gust says that a good rule for stroke survivors is to refuse to accept the idea of “a plateau” limiting their recovery. So that’s what I’m doing. And amazingly, I have yet to see a plateau. Every single day, I see slight but noticeable improvements. For instance, I typed this sentence using the three fingers of my left hand….not easy, nor graceful, but a start.

I sometimes feel disappointed for still having a pronounced limp when I walk (my arm and leg spasticity, or tightness, becomes much worse when I’m cold). Then Sara reminds me that I’m also walking through snow, and up and down multiple flights of stairs at the gym and the university (holding the railing). So there’s that.

The physios at the hospital filmed me walking. “This isn’t for us,” they said. “This is for you, so you can see how far you’ve come.” Sara came into our living room last week to find me lying on the floor. I’d been trying to squat the way I used to pre-stroke. “Are you okay?” she asked. “I tipped over,” I said, not moving. “Do you need help getting up?” she asked gently. “No.” Sometimes, flat on your back, you just gotta laugh.

My proudest news is that for the first time I can actually make a couple of chords on my guitar… WITHOUT always using my right hand to “arrange” my left fingers. Before Christmas I couldn’t even keep my left hand on the guitar without it sliding off under its own weight. Now, the feeling of very slowly moving my left fingers into an A or D chord (the easiest) is pure joy. A stroke-specialist in Halifax I met with over Zoom said to keep at the guitar daily. That seems to be the key: my daily routines, using my left hand as much as possible, even though it takes so much more time (you’d chuckle to see me spending three minutes trying to fish a spoon out of the cutlery drawer for my tea – do you remember Tim Conway’s SOOOOO-slow routines from the Carol Burnett show?).

Book Launch!

One of the best parts of being at least partly back in the routine is getting back to my writing. With my colleague Barry from the History Department who also happens to run the Antigonish Heritage Museum where I was first invited to give the talk that ended up ballooning into my new book, we’ve set a date for the launch — fittingly at the museum! “Someone Else’s Saint: How a Scottish Pilgrimage Led to Nova Scotia” launches there on Thursday April 24th, at 7 pm. I’ll tell the story of the book and do a reading or two, some of the local walkers will attend (I hope), and fingers are crossed for some fine local music! Two days later, Sat April 26th, I’ll be in New Brunswick for the Greater Moncton Riverview Dieppe Book Fair from 10 am to 3 pm. The book is already getting some nice attention, with a planned CBC Radio (All in a Weekend) interview. It’s only in pre-sales, but it’s already listed as #15 in Amazon Canada’s “hot-sellers” in its category (see below). But please don’t buy it there … pre-order it through your local bookstore instead! 🇨🇦

Taking Time for Warm Stanfields and for Berry Blossoms

Like everyone else, I’m having a hard time not doom-scrolling and feeling anxious these days because of the news. But my stroke recovery books – and my common sense – tell me that what’s best for my condition is to maintain a hopeful and constructive attitude, and allow my self-discipline and anxiety to be tempered by humour and forgiveness (good advice for us all). So I’m going to be lining up some post-stroke, retirement-adjacent therapy. I’ll try to dial down the work and dial up the creative writing a bit more all the time. And even on my lower sodium, fat and sugar regime, there’s some room for the occasional self-indulgence, such as these 100% Quebec-made “Berry Blossoms.”

As you might be able to tell from this photo of the moon rise over our neighbours’ place, it’s been cold here in Pomquet – and the cold affects me more since my stroke. So it’s also been great to discover that the “Stanfields” long johns of my youth is now a full clothing line, made since before Canada was even a country, just down the road in Truro Nova Scotia. I bought myself a sleeping shirt and Sara a tee-shirt for Valentine’s. These days, I think we can all agree with the logo.

If by chance you’re thinking of saying goodbye to Facebook at some point, please consider subscribing to this blog as a way of staying in touch. Thank you for following me along on this pilgrimage through stroke, and may the support you’ve given me return to you in a thousand ways. Courage and health to you, from our home to yours!