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Week 3 Report: Stroke-A-Versary

Scotland

Before anything else, THANK YOU to all of you who’ve said a prayer, sent up a thought, done a meditation or walk, hoped a hope, or lit a candle for my healing. I’m strengthened and encouraged by you. Thanks. It helps me tremendously. Folks have sent me photos of candles they’ve lit for me in Scotland, in Germany, in Norway, and all over Quebec and Canada.

Norway

Oddly, even though my prestroke agenda has emptied, my days are full. The ingredients of those days are basic, and familiar to anyone who’s been stuck in hospital for an extended period: did I have a bowel movement ? (which sometimes means: was there a staff person around when the urge hit?), am I standing enough to take pressure off my derriere and keep myself healthy? Did I do my hand movement visualization exercises? Did the nurse forget to move my table back after taking my vitals, necessitating a 10-minute-carefully-planned maneuver to recover it, along with the call bell? Can I get a bowl with warm water to wash up, or will breakfast arrive early, which will mean no space for the tray on my table and the impossibility of fetching my food off the chair later? When did I last change socks? When is shift change, which will eliminate help for a half-hour? If I forget to charge my earbuds, how will I be able to sleep when the man with dementia across the hall breaks free from his two security accomplices and roams the hall cursing in the night?

It sounds worse than it is. For every aid who empties the urinal then slouches out of the room leaving it 20 feet from the bed, there is another whose warm greeting is sunshine, and who out of the blue offers to wheel me to the patio for some sun or to change the water in the flowers. Or the nurse who said to us “you mean you haven’t seen your test results? They’re your property…let me fetch them so you can take a photo or scan them!”

Speaking of tests, mid-week I was taken by ambulance the 2 hrs to Halifax for a TEE test of my heart. It turned out to be positive: I have a “communication” (a hole) between the upper chambers. Apparently this is more common than most people know and affects about a fifth of the population. The problem is that it can allow clots to pass from the legs directly to the brain. When I asked the ward doctor what this meant in terms of next steps, he didn’t know.

To this point I’ve been sheltered from many of the ill effects of institutional care by Sara, who has been both cheerful caregiver and steely-eyed advocate for me all along. Unfortunately she was brought low this last week by a terrific cold none of us wants me or other patients to catch.

The good news is that this last week also brought improvements for me that have helped that situation. When I’m not tired, my facial droop almost disappears. Mid-week the physios declared me able to transfer from bed to chair and back again by myself. I don’t really need spotting even to the toilet anymore with my walker, so I expect that requirement will be lifted soon as well. The doctors have written me “passes” that mean, as soon as Sara recovers, that she could take me out of hospital for short periods – although neither of us wants me to miss any physio. Yesterday and today I walked twice the full length of two wings of the ward to the small chapel, where I could look out at the changing leaves. Once I got out myself to the small third floor patio and just enjoyed the sun on my face a long while. I’ve learned to move my body so that I can sit up myself on the edge of the bed and can now give myself a sponge bath. The nurse couldn’t believe I can put my own socks on. Not pretty, but do-able.

(video below of walking)

My left leg has moved from being unresponsive to generally going roughly where I want it to, which is fantastic. It’s draggy, but coming along. Arms and hands recover more slowly, they say, and I’m no exception. But there have been changes: I can now put a bit of limited weight on my elbow and arm, I can make a reasonably tight fist now, curl my bicep and curl my fingers with much less concentration than before. I lifted my index finger once. I can curl my fingers around the margarine and use my other hand to pocket it into my left thumb to help spread it.

My brain seems to have forgotten where to send the “move” messages to my left hand. Lori, my cheerful and steadfast OT, has taken to tapping the muscles which need to work with her finger…this helps my brain know what to focus on and works surprisingly well. My triceps were hardly my strong suite even before the stroke…I search my mind in vain for them now, until the tapping begins.

It’s been encouraging that several of my earlier writing projects came out this last week. My piece on Aware-Settler Hermeneutics with the Society of Biblical Literature’s teaching resource Bible Odyssey, the proofs for my article (right beside Sara’s) in the upcoming volume Judeophobia, and my essay in CrossCurrents about walking in north Dublin, Ireland and saying goodbye as we headed back to Canada. I can’t celebrate these with Sara as I would at home. But I’m thankful nonetheless.

So: every day some small improvements. It’s interesting that relationality, so important to our thinking about planetary crises, and about justice, is also so crucial now personally, to the body’s working. The unaffected parts of my brain and my left side are building new relations. As in every new relationship, that takes time, patience, good humour and a willingness to celebrate every new connection, no matter how modest.

photo of two student nurses who took excellent care of me last week.

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Two-week strokeaversary

It’s ironic that my two-week stroke report coincides with Sept 30th, the feast day of St Jerome. My Gatto Chair position at St Francis Xavier University is to research and eventually write an historical novel on Paula, the rich young elite Roman ascetic companion of, and patron to, Jerome.

I’m not getting any of that work done now, here in the hospital. My dean and chair are graciously paying my usual stipend while we figure things out.

Jerome’s letters are hilarious. He’s a famous braggart about the self-inflated hardships he faced. I’ve been thinking on that when I have to ring a bell and wait on the harried staff here to come help me go to the toilet or move me to my wheelchair. Or just about anything.

I hope I don’t sound like drama-queen Jerome when I report on my week.

I started official physio sessions this week. They will be twice a day, once on weekends. A team of four came in to assess me. They seemed pleased with the progress even since my last charting. I was surprised to hear I might be up to three months in hospital, eventually with times to go home overnight and weekends, depending on my progress. They pushed and pulled and asked me to imagine I was moving my unresponsive arm, and told me they could detect some of the muscles attempting to respond. While one had my foot, behind me another started waving. I turned my head to see what she was doing and apparently passed that test, by proving I still have my peripheral vision.

From my window I can see up toward a white water-tower and Mount Cameron farm, once the spot where the radical and dynamic sisters of Saint Martha raised food for the hospital and the university. Sometime during the week while looking at that I decided my three month goal will be to try to walk up the small rise to that tower with Sara. No one was around when I first thought that and for 30 seconds or so I wept giant wracking quiet sobs, perhaps at the shock of the contrast with a walking pilgrimage just two weeks prior, then got on with life.

My gentle physio coaches, Lee and Jay (who has tattoos of the Muppets) had me going through the movements needed to get my left foot off a bed and on the ground so I can swing myself to a sitting position on a bed … no mean feat with no strength in my left arm for pushing up and nothing for my right to grab. My core strength will be great after this. Sunday (yesterday) at the end of the session, Lee asked me to walk the twenty feet between the parallel bars with no one holding my elbow or waist. It was my first unassisted walking since the full stroke, and scary as hell. But it felt great when I was done. After physio I slept 20 minutes.

My arm, in brief: with a lot of grunting and core tightening I’ve managed to curl my left-hand fingers slowly into a light fist. I can now bring my thumb to my forefinger using intense concentration. Just yesterday I imagined doing a bicep curl and my forearm lifted slightly. I also managed a slight wrist movement for Sara.

The physios said that what I’d already been doing – imagining using my arm and hand in real time, as if they were working – was in fact their initial strategy. I’m already on the right track.

A friend sent me a photo of the candles they lit for me Sunday morning. It means a great deal. For a Lutheran, the extent to which I appreciate and crave candles lit for my recovery is perhaps strange. But everyone’s words and gestures have me feeling surrounded with care. Buddhist friends have let me know they spent meditation sessions with me as their focus, another dedicated a walk to me, there are prayers in congregations across the country, and my name has been read in more than one synagogue in the weekly prayers for health. A letter written in fountain pen, homemade muffins, cards, flowers, a fruit basket, emails, lucky origami stars, emojis, thoughts. They’re all importanyt I’m grateful. Thank you – the support sustains me.

Sara is such an incredible care-giver and coach and sponge-bather and daily smoothie provider and cheer-leader … and yesterday — my jailbuster! Yesterday afternoon was sunny and warm. Instead of taking me to the usual roof-top patio on our wing, she wheeled me right on past into the elevator, then out the main entrance of the hospital into the light and air. We headed for the nearby grotto garden. The bees were buzzing in some purple aster and brown-eyed susans and other late flowers, and we found a wooden gazebo where we read to each other so I could practise improving my speech and enjoy the sun.

Then, before she left, Sara held my arm and hand carefully and I danced to some tunes on my laptop from my wheelchair. She moved my left hand and arm to match my right. If anything will get this arm going, it might be dancing!

I wonder what Jerome would have thought of the first song to pop up on my mixed playlist. It was: “You Can’t Always Get What You Want.”

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one week post-stroke

or as Sara calls it, my strokaversary….

today I felt a bit tired, and down when the doctor told me about possibly having to go to Halifax for another heart test and the lovely, kind physiotherapists remarked that some folks never recover use of their hand. i’m officially a 2-person transfer here in the hospital since i tangled my feet two days ago and fell on my way to the chair.

whats been hardest is not being absolutely sure my condition has bottomed out yet. i know it will be a long hard road to whatever recovery i’m fated for. but i’d like to be going the right direction at least.

hard to believe i walked 90 km with my youngest up the southwest coast of cape breton just a couple weeks ago, and 23 km from Pomquet Beach to Antigonish on the eve of the stroke. right now my pilgrimage is to shuffle my walker to the end of the hall with one of the saints who works here helping hold my completely unresponsive left hand on the handle and me coaxing my reluctant left foot to listen to me and lift and step.

but then tonight I was able to lift my bad foot up on the bed by myself, in what seemed a momentary miracle, and I think I moved my thumb a hairbreadth (Sara saw it too). I’ll take these small victories for now.

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A Nova Scotia Ninian Walk

Would you like to join a group walking from Pomquet Beach to St Ninian’s Cathedral, Antigonish, linking South-West Scotland to Nova Scotia and remembering an ancient Celtic saint on his feast day? If so, contact Dr Matthew Anderson of Saint Francis Xavier University, Antigonish.

Saturday Sept 14, 2024 we’ll start from Pomquet Beach and head to Lower South River. On Sun Sept 15 we leave from Lower South River to St Ninian’s Cathedral to arrive in time for the 150th anniversary celebration. (This is an ecumenical pilgrimage, open for everyone, not just Catholics). On Saturday we will stop by Ste-Croix Church in Pomquet and have lunch at the Musée de Pomquet as we pass.

The walk is 23 km in total (17 Sat, 5 Sun). For more info see the FAQ sheet below. To sign up, contact Dr Matthew Anderson, Gatto Chair of Christian Studies at Saint Francis Xavier University, at manderso (at) stfx (dot) ca. Please also check out the three videos giving background information on Ninian, the Walks, and Antigonish’s Ninian connections!

Dr Anderson walked the Whithorn Way, the Scottish pilgrimage to St Ninian, in 2019. His book about that walk and this Nova Scotian trek will come out with Pottersfield Press in 2025.

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Walking the Celtic Shores

“Take a picture of your father,” I said. “Something nice,” I said.

One of the frustrations I had while being the part-time director of Camino Nova Scotia was leading pilgrimages I couldn’t actually walk! I schlepped bags, drove, unlocked and cleaned halls, and cooked for the pilgrims who had signed up. All the while wishing I could walk the trails in Nova Scotia myself.

So this spring, when my youngest from Montreal suggested a “long walk with papa” I jumped at the chance. We finally settled on the Celtic Shores Trail in south-west Cape Breton. It was close to home, and because of the SATbus (Strait Area Transit) I was able to plan a way we could leave a car at the end of each day’s walk and still get back to the start point. (Although it meant some VERY early mornings by the end).

All told, we walked from Troy to Inverness. We had a WONDERFUL time, met lots of folks (although only one other distance walker on the trail), ate tons of sea-food, listened to Cape Breton fiddle music, chatted all day as we walked, and swam in the ocean.

I highly recommend this trail, and the use of the SATbus to coordinate getting back to a car at the end of each day.

Some tips: check the “take a break” walkers’ benches for wasps’ nests…before sitting down! Note that the SATbus doesn’t run weekends, and must be booked in advance. Check out the Ceilidh Fishers’ Coop in Port Hood for fresh seafood and to report your progress to a local trail volunteer. Bring bug spray (although they weren’t bad for us this time around), sunscreen, and rain-gear. We had bear-spray. Thankfully we didn’t encounter any, but we saw some fresh scat. Especially if walking on a weekend, keep your eyes open for four-wheelers, which are a far greater concern. And have fun!

Our stationary Air B&B RV in Craigmore, NS

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Winnipeg Free Press Review of The Good Walk

What a wonderful surprise to have Paul Gehrs send me a short note to say: “I imagine you’ve already seen this, but excitement [for your book] is building here in Winnipeg.”

I hadn’t seen it. Thanks to Gail Perry of The Winnipeg Free Press for this gorgeous review!

Photo of the full-page book section spread below, or if you prefer, the link to the paper’s column here: https://www.winnipegfreepress.com/arts-and-life/entertainment/books/2024/05/04/the-trails-less-travelled

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Today’s the Day: The Good Walk Release!

So many years in the writing, and finally – here it is, world!

Today is the official launch of The Good Walk (University of Regina Press, 2024). It’s no longer listed on all the websites as “pre-order.” It’s out in the wild. And here’s a photo from McNally-Robinson Bookstore in Winnipeg to prove it!!

“Equal parts memoir, travelogue, and manifesto, The Good Walk recounts the adventures of settler and Indigenous ramblers who together retrace the earliest historical trails and pathways of the prairies” (from the back cover)

“Unsettles all our precious notions of a peaceable history with wisdom, erudition, and such good grace” (Trevor Herriot, author of The Economy of Sparrows and Towards a Prairie Atonement)

Review by Foreward Reviews here.

You can order the book here, or from any online bookseller!

Listen to a CBC interview about the book here.

“Anderson observes and savours all the spirits and souls of life…” Louise Halfe Skydancer

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Be Careful What You Name a Lunar Lander

Events this last week proved how unintentionally fitting a name can sometimes be. The Peregrine Lunar Lander, a joint NASA-Astrobotic mission launched January 8th, is no longer expected to reach its goal. It was set to be the first commercial space probe, and the first American vehicle since the last Apollo mission in 1972, to land on the moon’s surface. However, several hours after launch, Astrobotic issued a photograph showing damage to the outer insulation of the craft. The statement noted that because of a propellant leak and difficulties in orienting the ship, a landing is now considered impossible. On social media, Astrobotic went on to state: “At this time, the goal is to get Peregrine as close to lunar distance as we can before it loses the ability to maintain its sun-pointing position and subsequently loses power.”

NASA/Kim Shiflett – https://www.flickr.com/photos/nasakennedy/53450826924/

As a scholar of pilgrimage and pilgrimage studies, the name Peregrine (“pilgrim”) strikes me as uniquely suited to the Lunar Lander, which will now wander through space.

“Peregrinus” originally meant “foreigner” or “resident non-citizen [of the Roman Empire].” But already in ancient times it became the term for a pilgrim. For instance, a Roman pilgrim who travelled from Trier, in modern-day Germany carved his name “Peregrinus” as a thanksgiving on a votive offering stone at the Sulis-Minerva springs in Bath, UK, perhaps two millennia ago, and you can still see the stone there.

Eventually, the word “Peregrine” came to describe a special type of pilgrim, perhaps more related to the fate of the spacecraft that will now drift through the cosmos. My colleague and friend Sara Terreault at Concordia University, Montreal, describes (in this article: https://arrow.tudublin.ie/ijrtp/vol7/iss1/4/) how in the early Middle Ages, “peregrination” became a new type of pilgrimage that proceeded not toward a sacred destination, but away from a beloved homeland. The pain of this permanent separation from home was seen as a kind of “white” or living martyrdom, as opposed to the “red” or bloody martyrdoms of so many early Christian saints. Especially in Ireland and England, and amongst “Insular” monastics, this type of pilgrimage became a movement which sought holiness in exile and wandering. Bernice Lamb-Senechal has also written about this special type of ancient pilgrimage, here: https://arrow.tudublin.ie/ijrtp/vol8/iss1/9/. John Schultz and Ian Reader have identified a similar contemporary phenomenon among serial pilgrims on the Japanese Shikoku pilgrimage, in Pilgrims Until We Die: Unending Pilgrimage in Shikoku (Oxford University Press, 2021).

In the wake of the lunar let-down, scientists are scrambling to recast definitions of “success” for their mission. “Every challenge presents an opportunity to learn and refine our approach,” stated Dr Minkwan Kim of Southampton University in The Guardian. However, the failure of the Peregrine Lander can’t but be a blow to those who placed remains on the ship, hoping for them to have a permanent resting place on the moon. The human remains included DNA or ashes from George Washington, John F. Kennedy, and Dwight Eisenhower, science fiction writer Arthur C. Clarke, Star Trek founder Gene Rodenberry, and several cast-members of the original Star Trek series … Scotty (James Doohan), Bones (DeForest Kelly), and Uhura (Nichelle Nichols). It’s noteworthy that the plans to deposit human remains on the moon went ahead over the formal protests of the Navajo Nation, for whom the moon is sacred, as it is to many Indigenous peoples (https://www.npr.org/2024/01/08/1223377817/navajo-moon-human-remains ).

Now, because of a propellant or valve failure, the Peregrine will become a true space wanderer. For better or worse, it will live up to its name. Like the ninth-century Irish pilgrims who set out in a boat with no sail or oars, trusting themselves to where the seas and winds might take them, Peregrine is truly on a course for the stars, boldly going where no one has gone before.

By http://i300.photobucket.com/albums/nn13/etmassey/star-trek-cast.jpg, Fair use, https://en.wikipedia.org/w/index.php?curid=26911344

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Leonard and Paul’s All in a Weekend Interview

Last weekend I had the pleasure of chatting with Sonali Karnick on CBC Radio One about “Prophets of Love: The Unlikely Kinship of Leonard Cohen and the Apostle Paul.” You can find the interview HERE. Sonali is a wonderful interviewer! We’ve chatted so many times that it felt to me a bit like a quick convo with a friend about my latest news. I hope you enjoy our visit as much as I did!

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Discount Code on my Latest Book!

The lovely folks at McGill Queen’s Press have given me a discount code for 30% off my new book, “Prophets of Love,” to share with friends and family.

If you are reading this, I consider you friend or family (and the chances are pretty good you actually are!). So the code is MQF2

If you’re in Canada, order online and use the code HERE.

If you are in the UK or Europe, email direct.orders@marston.co.uk and use the code with them.

If you’re in the US or the rest of this big world that both Cohen and Paul loved (however differently), email orders@press.uchicago.edu and use the code with them!