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My “Year + Two Month” Strokeaversary

Somehow my one-year strokeaversary slipped by without a blog post, even though Sara and I marked it privately. Now here we are: way past twelve months. Already to 14 and counting.

I’m not sure why I didn’t push myself to post a one-year column on the actual day.

It could have been that I wasn’t emotionally ready. I was – and I still am – processing the fact that as far as I’ve come, I haven’t yet mended as I’d wished. Paralysed and stuck in my wheelchair a year ago at St. Martha’s Regional Hospital, Antigonish, I told my youngest, Gabe, that by September 2025 we’d be going for another 100 km walk to celebrate my recovery, like we did on the Celtic Shores Trail along the Cape Breton coast in the month before the stroke.

Well….that won’t be happening anytime soon, although I still hold out hope. While I can walk farther and faster than at any point since my brain damage, my best distance is a couple of kilometres with a limp. It’s hardly 100 km in a week like we did in 2024, striding into a new coastal village every afternoon in the late-afternoon sunshine.

I also dreamt that at one year post-stroke the part of my body the slowest to recover, my left hand, would be fully back in use. I imagined somehow I’d be chording smoothly on guitar, holding my mug of tea, and most importantly, typing. The truth is that yes, I can actually DO all those things, sort of! It’s a miracle. And I recognize that miracle when I’m properly “glass-half-full” thinking. For instance, I’ve typed this blog-post using both hands.

But the deeper truth is more nuanced.  Chording is still slow….usually too slow for a song to really feel like a proper song. A full cup of tea is dangerous to hold in my left hand for too long – and a hot cast iron pan more dangerous still! But I’m able to reach, and lift, and manipulate more with that hand every week. I can now screw the milk and toothpaste lids off and on as a leftie. I regularly empty the dishwasher with my left hand as therapy. I can almost snap my fingers and make the Vulcan salute. Holding a nail in September while hammering was sometimes an act of faith. But the nails got in. Eventually.

Typing is not as slow as it was. But it’s still tedious, difficult, and tends toward errors. Sara says that she can tell my typing has improved because in the last month I’ve written a lot more pieces – articles, reviews, and the like. “You must feel more comfortable composing,” she remarked. “You’re getting back to your enthusiasm for new ideas.”

I feel that too. This fall I taught an online course on Leonard Cohen and St Paul, and had a wonderful time with my adult students. My classes about early Christian asceticism at StFX are fun, and recently I took first-year kids on a tour of the Saint Ninian Cathedral, being sure to point out features I write about in my book “Someone Else’s Saint.” Sara and I each gave keynote presentations on subsequent weeks at different institutions in Halifax, which was a chance for trips “to the big city” and mini-holidays.

My public talks and interviews are happening again. I was interviewed this fall by Jesse Zink of Montreal Diocesan College in his “Principal Meets Author” Series. Be sure to listen to an upcoming episode of CBC Radio’s “The Cost of Living,” where I’ll be on a segment talking about Advent Calendars! This week I’m also presenting in the Research Chairs Colloquium Series at my university, an honour for me.

So, the one-year strokeaversary slipped by.

When she read what I just wrote above, Sara pointed out that maybe it wasn’t disappointment that stopped me after all. Maybe I let the 12-month blogpost slide simply because my fall has been so incredibly busy. True enough. But the anniversary didn’t pass completely unmarked.

It turned out that I had a follow-up appointment at the hospital one year to the day from my initial TIA – Trans Ischemic Attack, September 16th. So I ordered two cakes from our local Sobeys and Sara and I took them in to mark the day: one for the physio ward, since that’s where I’ve spent so much time post-discharge, and the other for St. Martha Regional Hospital’s third-floor hospital wing, where I lived for almost four months last fall.

Those cakes turned out to be a pretty good metaphor for the hospitalization and recovery process, and for the nature of institutions. On the physio wing, it turned out that almost all of the Occupational Therapists and Physiotherapists who’ve worked with me this past year were there. To a chorus of “oohs” and “aahs” the cake was quickly divvied up. There was lots of laughter and shared memories, and many thanks and congratulations given and received. It was wonderful.

However, when I carried my one-year cake to the nurses’ station, it was a different story. That day, none of the faces looked familiar at all, except my own GP, who was at the desk. Apparently, there’s been quite a bit of turnover recently on the ward. A nurse politely thanked me for the cake, took it, and congratulated me on my recovery. Sara and I stood around a minute or two awkwardly, then left. I’m sure the staff there that day enjoyed the sweets. But through no fault of theirs, they didn’t know me from Adam. There was no one at the desk from “my” past, no one who shared my memories, and no one to mark with me those tumultuous months that were so significant.

That’s life, I guess. In the end, our experiences change us profoundly. Sometimes permanently. But for everyone else, things can sometimes go back to normal pretty quickly.

Speaking of major life-changes this fall: in October, Sara’s parents moved back to Moncton for the winter, after a wonderful, but very busy, summer of cooking, canning, and building. I took a very quick, very short trip to Montreal to hug my kids after their own family tragedy: the untimely death of my ex, their mom. Sara and I made our first juice from our first grapes, and filled our pantry with summer’s jellies. Since then my own step-mother, Mary Anderson (Hattum) passed away, along with another good friend in Saskatchewan, John McPhail. Oh yes, and a feral cat we’re calling Theodore seems to have adopted us, on and off….

Things aren’t the same as a year ago in so many ways, some large, some small. I keep having to learn and relearn the lesson that life is beautiful, often fragile, and that the time to tell folks you love and appreciate them is right now.

I feel very fortunate to be alive, and thankful every day for the chance to experience this world in all its confusing glory. Strangely enough, I believe my life has been enriched by my stroke a year ago, and by the struggles that have followed. I appreciate you who have accompanied me through this year (plus a couple of months). As the leaves drop, the Grey Cup finishes (yay SK!) and November tilts toward Advent and Christmas, I hope you find some love and joy in these days as well.

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11-Month Strokeaversary: an update in 9 gerunds

What better therapy than dancing with Gabe? (video below)

As the ONE-YEAR anniversary of my stroke approaches – wow! – my recovery continues to follow the quick rise and flattening curve (see below) that the medical staff predicted for me, as for other stroke survivors. And it’s true – eleven months in, the changes are more subtle. However, every week there inevitably still turns out to be some marked improvement. My physio supervisor, Jessica, tested me last week and told me I’m much stronger in my leg than just a month ago, and my left arm has also strengthened considerably in recent weeks. The Theraband exercises must be helping.

My recovery has gone far, far beyond what many of my doctors and medical team initially predicted in the dire days of last fall. With Sara’s urging, I continue to believe that the curve will never flatten out completely. As the book Stronger After Stroke maintains, there never needs to be a complete plateau to recovery, for a stroke survivor who is fortunate enough to have good support, a stabilized health condition, and dogged determination to work together with the brain’s natural plasticity.

So on this 11th-month strokeaversary, here’s some of what recovery has looked like!

Theraplaying

The wonderful physical therapy and occupational therapy folks at St. Martha’s Regional Hospital are starting to hint that I can’t be an outpatient forever. Of course, they’re right. “As much as we like you and look forward to our sessions,” they tell me, “we have to make room in our case load for new patients…” The hospital has been incredibly generous, and I’ve come to really love my outpatient team. I moved from two sessions a week to one only this last month. Colin, the smart and thoughtful tech who took over from the equally helpful physio tech Janna, is now regularly kicking a soccer ball with me. The catch: I have to use only my left foot. I’m finding that soccer and the funny-face bean-bag toss are my favourite therapy activities. Like a toddler, I’m improving my balance, coordination, and hand movements through play, which makes it seem (almost) easy.

Medicating

After my heart surgery in April to close a PFO (the hole between the upper chambers of my heart), the Halifax surgeon put me on precautionary Plavix, to guard against post-operative complications. I just came off of it and I couldn’t be happier. I’ve been bruising after every blood test (one time the blood actually spurted out) and also when I bump or ding myself as so often happens in summer gardening and construction season. I remain on low-dose Aspirin and a suite of blood pressure pills. But my GP and the cardio team at the hospital have dialled back even these a bit, and now I can crouch and stand up without threatening to black out. Sitting on my haunches to look in a cupboard reminds me of my old self.

Straightening

It was Lindsay, the incredibly gifted and helpful Occupational Therapist at the Nova Scotia Rehabilitation Centre in Halifax, who suggested “Oval 8 Finger Splints” for my left hand’s fingers most reluctant to recover – my ring finger and my pinkie. My pinkie has been broken a few times over the years of basketball and tended to go its own way even before the stroke. I find the splints helpful at the end of a busy day when my fingers tend to curl and stiffen. My typing is improving slightly, although when my left hand quickly tires, those two fingers droop and tend to type their own messages.

Hearing

Of the many effects of the stroke, one of the most subtle has been a slight alteration in my hearing, or more accurately perhaps, my brain’s processing of what I hear. I’ve noticed more trouble understanding Sara when she’s in another room, or there’s ambient noise.

At the same time, my need to focus more carefully on whatever I’m doing so as not to lose balance, trip, or drop something, means my ability to multitask, including “listening, while…,” has diminished. And, I’m not young anymore.

So my audiologist appointment finally came through. The audiologist took me into a sealed quiet room, ran tests on both ears, then gave a series of tests I had to respond to.

The results? Apart from the normal post-stroke inability to multitask because of increased need for concentration, my ears are typical old guy’s ears: some age-related hearing loss, and that’s it.

I actually enjoyed the challenge of having four numbers spoken at once into both ears and having to try to correctly identify them!

Canning

When Gabe, my youngest, came to visit in August with Ray, they said they wanted to do some jelly-making like we did last year. The Saskatoons were done and it was a bit early for the chokecherries, but the jelly turned out well.

Our place is prolific for berries despite the scary and record-breaking drought. I spent hours picking Saskatoons earlier in the season, and our strawberries and grapes are plentiful.

Holding boughs with my left hand while picking berries with my right turns out to be good therapy, too.

Dancing

Gabe’s visit this month also gave me a chance to re-learn and re-try the swing steps we’ve done so many years together, and also to re-learn some of the guitar chords my fingers have forgotten, from all the songs we used to play together. I’m thankful.

If you watch the video (click on the photo below), you’ll see how my face goes mask-like (not direct stroke damage but because I’m concentrating on not falling), my left arms wants to pull in and tighten, and I lose my balance briefly. But overall, what a joy, and what an improvement! Sara has been keeping up my dance therapy since Gabe left…

Reading

My worlds overlapped recently when The Canada Lutheran asked Sara to write a column for their regular Q&A feature. As usual, Dr. Sara Parks, who is a consummate teacher and communicator, produced something interesting, academically solid, and pitched perfect for non-academics. Have a read below.

I recently finished Tanis MacDonald’s wonderful book Straggle. I highly recommend it – it’s full of beautiful writing and profound observation. And Tanis’s thoughts on “ungainly” walking fit my new post-stroke life so well….

Travelling, Walking, & Celebrating

This was also the month that I took my first solo plane trips. I’d been invited west to celebrate the tenth anniversary of our Wood Mountain – Cypress Hills trek in the summer of 2015, featured in my book The Good Walk (URP, 2024). The Saskatchewan History and Folklore Society, which has spearheaded the walks since, was having its board meeting at Wood Mountain in conjunction with the event.

Even though Sara could not accompany me to hoist bags, hold my hand and generally be my security blanket, I was lucky that my brother Mark and sister-in-law Barbara (a recently-retired physio) were there to meet me in Regina. We stayed in their camper at Woodboia Camp near the Wood Mountain Historic Site (the NWMP Fort at Wood Mountain). That’s where Hugh Henry, Richard Kotowich, Hayden Thomassin and I started out 10 years ago to walk the 350-km North-West Mounted Police Patrol Trail (Traders’ Road) across Treaty Four territory.

10 years later, posing with Hugh Henry of the Sask History and Folklore Society

Among the highlights of my trip was visiting the Badlands in the “East Block” at Grasslands National Park. If you ever have the chance, be sure to visit this incredible place.

One of the most significant tests of my recovery was putting on my hiking boots (this time, with elastic laces) and re-walking a portion of the trail from Wood Mountain to the Lakota First Nation. Ten years ago, we did the three miles easily in the morning. This time, I cut out when the trail got muddy and hard to walk, and rejoined later. I managed to walk about a mile and a half in total.

Another highlight was meeting Dr. Claire Thomson, who led us around the historic site at Wood Mountain and gave both an academic and a personal history of the area. Dr Thomson is a descendant of one of the early North-West Mounted Police officers, and of his Lakota wife. Her PhD research on the Lakota history of Wood Mountain won the prize for best doctoral thesis in Canadian Studies recently…I quoted her in The Good Walk and was delighted to meet her in person.

Authoring

At the Regina Chapters-Indigo store I spent an afternoon meeting old friends and new, and signing books. It was great that my western trip gave me that chance. Also this month I had a chance to sign books and present Someone Else’s Saint: How a Scottish Pilgrimage Led to Nova Scotia (Pottersfield, 2025) at the wonderfully-full and fascinating Dartmouth Book Exchange. It’s an incredible place, well-worth a visit!

My life as an author looks like it will keep me busy into the fall as well. In September the Atlantic School of Theology is hosting me for a series of six online lectures on Leonard Cohen and Saint Paul, following up on my book Prophets of Love (MQUP, 2023). You can find more info on those lectures by clicking the “Almost Like the Blues” link HERE.

This week my interview with CBC Radio One Cape Breton’s Wendy Bergfeldt came out on the afternoon show “Main Street.” God bless the public broadcaster! I was excited for my first Nova Scotia CBC interview…and our talk went so well it was broadcast over three separate afternoons! It was wonderful meeting Wendy – it turns out we have LOTS in common: growing up from Scandinavian settler grandparents in SK, attending the U of S in Saskatoon during the same years, living in the UK for a while, and then settling in Nova Scotia. Oh, and did I mention? A shared interest in decolonization, history, and pilgrimage! I’ll post the links to the interview soon. (In case you missed it, my earlier CBC Montreal interview with Sonali Karnick can be heard here).

Next Month: One Year

Soon it will be a full year since my stroke. I’ll be marking the occasion, for sure. Will I be celebrating? I’m not sure what to say.

My stroke cost me a lot that I haven’t yet regained: my sense of secure balance, my ability to walk long distances, to run, to dance smoothly, and to play songs smoothly on the guitar. And crucially, I can’t type with both hands like I used to, which is how I’ve written my essays, lectures, and books.

BUT: the stroke helped me realize what a community of support is around me, how good so many people are, what an incredible partner I have, and how precious life and health is. I’m thankful every day for just being able to walk and speak (and pee and shower!), teach, read, think, and do what passes for a “normal” life for me. Much less all that’s listed above.

In the end, it’s all gift. Because of my stroke last fall, I realise that now more than ever.

So, see you next month! I wonder what surprises await?

Sara found a more elegant solution for dripping juice than the complicated ladder-thingy I typically used.
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In the footsteps of a missing saint…

Tomorrow, September 16, is the feast day of Saint Ninian. In July, together with Christine Ramsay, Ken Wilson, and Sara Parks, I walked the Whithorn Way in Scotland, the medieval Royal pilgrimage route to St Ninian. To honour Saint Ninian Day here’s a short video of that pilgrimage!